Lewis, C., Obregon-Tito, A., Tito, R., Foster, M. & Spicer, P. The Human Microbiome Project: lessons from human genomics. Trends Microbiol. 20, 1–4 (2012).
Google Scholar
Claw, K. et al. A framework for enhancing ethical genomic research with Indigenous communities. Nat. Commun. 9, 2957 (2018).
Google Scholar
Reardon, J. Race to the Finish (Princeton University Press, 2009).
Tsosie, K., Yracheta, J., Kolopenuk, J. & Smith, R. Indigenous data sovereignties and data sharing in biological anthropology. Am. J. Phys. Anthropol. 174, 183–186 (2021).
Google Scholar
Tsosie, K., Yracheta, J., Kolopenuk, J. & Geary, J. We have ‘gifted’ enough: Indigenous genomic data sovereignty in precision medicine. Am. J. Bioeth. 21, 72–75 (2021).
Google Scholar
Haring, R. C. et al. Empowering equitable data use partnerships and Indigenous data sovereignties mid pandemic genomics. Front. Public Health 9, 742467 (2021).
Google Scholar
Asad, T. in The Politics of Anthropology: from Colonialism and Sexism Toward a View from Below (eds Huizer, G. & Mannheim, B.) 85–96 (Ithica Press, 1973).
Deloria, V. Custer Died for Your Sins: an Indian Manifesto (University of Oklahoma Press, 1969).
Hymes, D. Reinventing Anthropology (Pantheon, 1974).
Trouillot, M. R. Global Transformations (Palgrave Macmillan, 2003).
Broesch, T. et al. Navigating cross-cultural research: methodological and ethical considerations. Proc. R. Soc. B https://doi.org/10.1098/rspb.2020.1245 (2020).
Urassa, M., Lawson, D., Wamoyi, J., Gurmu, E. & Gibson, M. Cross-cultural research must prioritize equitable collaboration. Nat. Hum. Behav. 5, 668–671 (2021).
Google Scholar
Blanchard, J. et al. Power sharing, capacity building, and evolving roles in ELSI: The Center for the Ethics of Indigenous Genomic Research. Collaborations 3, 18 (2020).
Google Scholar
Hudson, M. et al. in Ethics in Indigenous Research, Past Experiences—Future Challenges (Vaartoe Centre for Sami Research, 2016).
Schroeder, D., Chatfield, K., Singh, M., Chennells, R. & Herissone-Kelly, P. Equitable Research Partnerships: a Global Code of Conduct to Counter Ethics Dumping (Springer Nature, 2019); https://doi.org/10.1007/978-3-030-15745-6
Jobson, R. The case for letting anthropology burn: sociocultural anthropology in 2019. Am. Anthropologist 122, 259–271 (2020).
Google Scholar
Kowal, E. Orphan DNA: Indigenous samples, ethical biovalue and postcolonial science. Soc. Stud. Sci. 43, 577–597 (2013).
Google Scholar
Smith, L. T. Decolonizing Methodologies: Research and Indigenous Peoples (Bloomsbury Publishing, 2021).
Viswanathan, M. et al. Community‐Based Participatory Research: Assessing the Evidence: Summary (AHRQ, 2004).
Caniglia, G. et al. A pluralistic and integrated approach to action-oriented knowledge for sustainability. Nat. Sustain. 4, 93–100 (2021).
Google Scholar
Coombes, B., Johnson, J. & Howitt, R. Indigenous geographies III: methodological innovation and the unsettling of participatory research. Prog. Hum. Geogr. 38, 845–854 (2014).
Google Scholar
Sharp, R. & Foster, M. Community involvement in the ethical review of genetic research: lessons from American Indian and Alaska Native populations. Environ. Health Perspect. 110, 145–148 (2002).
Google Scholar
Wallerstein, N. & Duran, B. in Community-Based Participatory Research for Health: Advancing Social and Health Equity (eds Wallerstein, N., Duran, B., Oetzel, J. G. & Minkler, M.) 17–29 (John Wiley and Sons, 2017).
Obregon-Tito, A. et al. Subsistence strategies in traditional societies distinguish gut microbiomes. Nat. Commun. 6, 6505 (2015).
Google Scholar
Mandava, A., Pace, C., Campbell, B., Emanuel, E. & Grady, C. The quality of informed consent: mapping the landscape. A review of empirical data from developing and developed countries. J. Med. Ethics 38, 356–365 (2012).
Google Scholar
Afolabi, M. O. et al. Informed consent comprehension in African research settings. Tropical Med. Int. Health 19, 625–642 (2014).
Google Scholar
Edwards, T., Cadigan, R., Evans, J. & Henderson, G. Biobanks containing clinical specimens: defining characteristics, policies, and practices. Clin. Biochem. 47, 245–251 (2014).
Google Scholar
Grady, C. et al. Broad consent for research with biological samples: workshop conclusions. Am. J. Bioeth. 15, 34–42 (2015).
Google Scholar
Lewis, C., McCall, L.-I., Sharp, R. & Spicer, P. Ethical priority of the most actionable system of biomolecules: the metabolome. Am. J. Phys. Anthropol. 171, 177–181 (2020).
Google Scholar
McCarty, C., Chapman-Stone, D., Derfus, T., Giampietro, P. & Fost, N. Community consultation and communication for a population-based DNA biobank: the Marshfield clinic personalized medicine research project. Am. J. Med. Genet. A 146A, 3026–3033 (2008).
Google Scholar
Tsosie, K. S., Yracheta, J. M. & Dickenson, D. Overvaluing individual consent ignores risks to tribal participants. Nat. Rev. Genet. 20, 497–498 (2019).
Google Scholar
Chavis, D. M., Stucky, P. E. & Wandersman, A. Returning basic research to the community: a relationship between scientist and citizen. Am. Psychologist 38, 424 (1983).
Google Scholar
Godoy, R., Reyes-García, V., Byron, E., Leonard, W. & Vadez, V. The effect of market economies on the well-being of indigenous peoples and on their use of renewable natural resources. Annu. Rev. Anthropol. 34, 121–138 (2005).
Google Scholar
Reardon, J. & TallBear, K. ‘Your DNA is our history’ genomics, anthropology, and the construction of whiteness as property. Curr. Anthropol. 53, 233–245 (2012).
Google Scholar
Schnorr, S. et al. Gut microbiome of the Hadza hunter-gatherers. Nat. Commun. 5, 3654 (2014).
Google Scholar
O’Doherty, K. C. et al. Opinion: conservation and stewardship of the human microbiome. Proc. Natl Acad. Sci. USA 111, 14312–14313 (2014).
Google Scholar
Dubois, G., Girard, C., Lapointe, F.-J. & Shapiro, J. The Inuit gut microbiome is dynamic over time and shaped by traditional foods. Microbiome 5, 151 (2017).
Google Scholar
Sprockett, D. et al. Microbiota assembly, structure, and dynamics among Tsimane horticulturalists of the Bolivian Amazon. Nat. Commun. 11, 3772 (2020).
Google Scholar
Stagaman, K. et al. Market integration predicts human gut microbiome attributes across a gradient of economic development. MSystems 3, 00122-17 (2018).
Google Scholar
Conteville, L. C., Oliveira-Ferreira, J. & Vicente, A. C. P. Gut microbiome biomarkers and functional diversity within an Amazonian semi-nomadic hunter-gatherer group. Front. Microbiol. 30, 1743 (2019).
Google Scholar
Fischer, M. In the science zone: the Yanomami and the fight for representation. Anthropol. Today 17, 9–14 (2001).
Google Scholar
Goncalves Martin, J. Opening a path with papers: Yanomami health agents and their use of medical documents. J. Lat. Am. Caribb. Anthropol. 21, 434–456 (2016).
Google Scholar
Redford, K. & Maclean Stearman, A. Forest-dwelling native Amazonians and the conservation of biodiversity: interests in common or in collision? Conserv. Biol. 7, 248–255 (1993).
Google Scholar
Vega, C., Orellana, J., Oliveira, M., Hacon, S. & Basta, P. Human mercury exposure in Yanomami indigenous villages from the Brazilian Amazon. Int. J. Environ. Res. Public Health 15, 1051 (2018).
Google Scholar
Clemente, J. et al. The microbiome of uncontacted Amerindians. Sci. Adv. 1, 1500183 (2015).
Google Scholar
Gibbons, A. Hadza on the brink. Science 360, 700–704 (2018).
Google Scholar
Pollom, T. R., Herlosky, K. N., Mabulla, I. A. & Crittenden, A. N. Changes in juvenile foraging behavior among the Hadza of Tanzania during early transition to a mixed-subsistence economy. Hum. Nat. 31, 123–140 (2020).
Google Scholar
Crittenden, A. N. et al. Harm avoidance and mobility during middle childhood and adolescence among Hadza foragers. Hum. Nat. 32, 150–176 (2021).
Google Scholar
Wynberg, R. & Chennells, R. in Indigenous Peoples, Consent and Benefit Sharing (eds Wynberg, R., Schroeder, D. & Chennells, R.) 89–124 (Springer, 2009); https://doi.org/10.1007/978-90-481-3123-5_6
Rubel, M. et al. Lifestyle and the presence of helminths is associated with gut microbiome composition in Cameroonians. Genome Biol. 21, 122 (2020).
Google Scholar
Sankaranarayanan, K. et al. Gut microbiome diversity among Cheyenne and Arapaho individuals from Western Oklahoma. Curr. Biol. 25, 3161–3169 (2015).
Google Scholar
Rogers, G. B., Ward, J., Brown, A. & Wesselingh, S. L. Inclusivity and equity in human microbiome research. Lancet 39, 728–729 (2019).
Google Scholar
Ambler, J. et al. Including digital sequence data in the Nagoya Protocol can promote data sharing. Trends Biotechnol. 39, 116–125 (2021).
Google Scholar
Morgera, E. The need for an international legal concept of fair and equitable benefit sharing. Eur. J. Int. Law 27, 353–383 (2016).
Google Scholar
Bissell, W. Engaging colonial nostalgia. Cultural Anthropol. 20, 215–248 (2005).
Google Scholar
Crittenden, A. in The Secret Lives of Anthropologists (ed. Hewlett, B. L.) 299–321 (Routledge, 2019).
Redford, K. H. The ecologically noble savage. Cultural Survival Q 15, 46–48 (1991).
Carmody, R. N., Sarkar, A. & Reese, A. T. Gut microbiota through an evolutionary lens. Science 372, 462–463 (2021).
Google Scholar
Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research (National Commission for the Protection of Human Subjects of Biomedical and Behavioral Research, 1979).
McClain, V. W. Patents on life: a brief view of human milk component patenting. World Nutr. 9, 57–69 (2018).
Google Scholar
Hill, J. H. ‘Expert rhetorics’ in advocacy for endangered languages: who is listening, and what do they hear? J. Linguistic Anthropol. 12, 119–133 (2002).
Google Scholar
Source: Ecology - nature.com
